Image description: White disabled person icon on blue background, with person leaning forward. Gold science beaker as wheelchair wheel.
For our June Diversity JC discussion, we focused on #DisabledandSTEM, looking at research from Dr. Kate Sang on the experience of disabled scientists in the UK, and Working Life piece on her experience in the US by Jesse Shanahan. We were also thrilled to have both Kate (@katesang) and Jesse (@Enceladosaurus) join us for the discussion.
First, we discussed some semantics, which are important:
It is also important to remember that “disabled” pertains to a very large and diverse group:
And yet it is clear STEM fields are losing disabled scientists:
Our conversation quickly noted why this is, and the range of challenges disabled scientists in STEM face (Science, Technology, Engineering, and Math), and their impact:
Barriers included physical access to not only areas for research…
… but also for support:
There is also the real financial cost that comes with having a disability – and let’s consider that on a graduate student budget.
The barriers and challenges go far beyond physical access and financial cost, as well.
…and this does not even get into the way in which disabled people are treated by health care professionals when they seek support and care:
One of the most important and poignant points in our discussion was how these challenges and barriers, in ways unlike any other experience, can force disabled scientists to make heartbreaking decisions between their science – and their health and lives.
For many, if not most, of us, science is where our heart and soul is – it is what we love to do. The idea of being forced to abandon our science is a hard one to even fathom – but it is a reality for many of our disabled peers, especially if they are without resources and support, at the institution, state, and federal level.
The importance of that support was also touched on in a recent New York Times op-ed on by Alice Wong (@SFdirewolf) , where the loss of support forced a major change in her career path. How may bright, creative, and curious minds are we losing before they even get started in STEM?
To avoid losing talented disabled scientists, there are tangible steps institutions can take to be more supportive and welcoming for disabled scientists, ensuring they can flourish in their fields.
Certainly, some institutions already have policies in place to support disabled scientists, but it is important to note that simply having policies on the books is not enough.
In addition, what resources, protections, and support are available may not be visible:
They may also require scientists to disclose their disabilities, which inofitself is a major challenge…
The stigma around disability means many people do choose to hide their disability if and when they can. This can limit visibility and access to support – but given how we treat disability in STEM, it’s up to institutions and the able-bodied community to ensure spaces are safe and resources are accessible. It’s on us to make change.
To these ends, there are many things able-bodied scientists can do:
Part of this is taking the time for serious self-reflection…
… and it’s critical to remember we have a lot to learn, and we will need training…
But – what also stood out from our discussion was how much making science more accessible can help scientists and science:
This was our first conversation that focused on disability, and we hope to focus on additional and more specific aspects of disability and STEM in the future. Please let us know topics and research of particular interest to you!
Also make sure to check out conversations happening under #DisabledandSTEM, and follow scientists tweeting there…
[These convos happen Fridays at 8pm EST, tagged under #EnceladosaurusQA!]
… and mare sure your twitter is accessible!
Thank you to everyone who joined and followed our #DisabledandSTEM discussion, and special thank you to Kate Sang and Jesse Shanahan! We look forward to more in the future!
Dr. PMS (@doctor_PMS)
Ian Street (@IHStreet)